Gene Therapy’s Major Anonymous DONOR touched by AVERY”S BUCKET LIST
Today is a day of both overpowering grief and overpowering hope in the SMA Community. As we described… read more
Avery’s Bucket List continues to touch the life of everyone around the WORLD
Avery's voice continues to be heard outside of our disease community. She has connected with people and… read more
SMA IT FORWARD
Super SMA KID Cashel will be turning 16 soon, he took it upon him self to start SMA IT FORWARD......He… read more
August is SMA AWARENESS MONTH……..
August is SMA AWARENESS month, and Sophia's Cure along with so many other SMA organizations works so… read more
The Spinal Muscular Atrophy (SMA) Communities “Bucket List”
The time has come to thank the many families and groups that have come together as part of the 200 commitments… read more
Aug 20, 2011 Hope For Charleston Spaghetti Fundraiser
Local Volunteer Firefighters located in the Reno Nevada area, are participating together to hold the… read more
Its Fun to Beeeee Threeeee…………
Sophia turned 3 on February 27 2012.....We feel so blessed every milestone we reach with our little… read more
Sophia’s Journey
Gene Therapy’s Major Anonymous DONOR touched by AVERY”S BUCKET LIST
Today is a day of both overpowering grief and overpowering hope in the SMA Community. As we … read more
SMA IT FORWARD
Super SMA KID Cashel will be turning 16 soon, he took it upon him self to start SMA IT … read more
The Spinal Muscular Atrophy (SMA) Communities “Bucket List”
The time has come to thank the many families and groups that have come together as part of the 200 … read more
Its Fun to Beeeee Threeeee…………
Sophia turned 3 on February 27 2012.....We feel so blessed every milestone we reach with our … read more
Upcoming Events
Avery’s Bucket List continues to touch the life of everyone around the WORLD
Avery's voice continues to be heard outside of our disease community. She has connected with people … read more
August is SMA AWARENESS MONTH……..
August is SMA AWARENESS month, and Sophia's Cure along with so many other SMA organizations works so … read more
Aug 20, 2011 Hope For Charleston Spaghetti Fundraiser
Local Volunteer Firefighters located in the Reno Nevada area, are participating together to hold the … read more
Tweets
- #AveryBucketList Amazing update over $89,000 has been donated in Avery's name for #SMA http://t.co/AqBGc888 about 18 days ago
- Major #SMA DONOR touched by #AveryBucketList and guarantees match for every donation that comes in to SCF in her name http://t.co/LQf7NaSj about 18 days ago
