Newly Diagnosed

Newly DiagnosedIf you are a newly diagnosed parent to a child with SMA we understand that this time can be a scary and confusing for your family. Please know you are not alone.

Sophia’s Cure Foundation is dedicated to helping families affected by this devasting disease. We know what it meant to our family that we had someone who was going through the same thing to talk to. Your choice of care for your SMA child is a difficult and personal choice. We urge you to please read the information below and visit the websites to help you with your decision process.

SMA Space is a wonderful resource for SMA Families from all over the country to connect and help eachother. www.smaspace.com

A Family Guide to the Consensus Statement for Standard of Care in Spinal Muscular Atrophy: http://www.mda.org/publications/family_guide_sma_standard_of_care.pdf

SMA Angels Charity provides families with PVC piping and slings for SMA Kids contact them here

Please feel free to contact us
info@sophiascure.org

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